who knows, perhaps they’ll work for you? i think that’s what a lot of you are trying to find out because c’mon, who doesn’t want to get out of this hell hole faster? good for you to find out what you should avoid! i really can’t say for sure on whether diet will affect one’s withdrawal time or not, but the diet does affect our moods and our overall feeling! He says the adrenal glands function normally in most TSA cases, and diet has little effect. , I’m in your camp on diet Juliana. The current struggle is fighting the itch and maintaining my diet. my skin deteriorate once i wasn’t using enough steroids anyway. As wonderful as this diet made me look and feel, I still knew I had to get off the steroids to complete the transformation. That way I really wouldn’t have to be working in front of people so much. So hard to leave the house so gotta call delivery…, hello Sean! Once my skin started getting out of control, I knew that the inevitable “switch-up” had to begin. I do see in the future me giving up steroids, but I just still need it to get through my life. IN POINT FORM). 1. His comments on diet, moisturizer withdrawal, the adrenal glands, etc are also very interesting. Change ). The top five signs and symptoms that could indicate your child is suffering from steroid addiction are: 1) You use or have used topical steroids regularly for a period of time that exceeds two to four weeks. I fully accept the doctrine of “deliciousness” for peace of mind and total health. Sounds great but I’m not sure if it helps with tsw and the side effects weren’t too pleasant from the testimonials I read. if you’ve already seen my photos in the photos page, my skin only worsened. These are the essence!!! When your skin and body become so dependent on steroid creams to heal and repair itself, the minute you stop using it, the eczema comes back in the form of topical steroid withdrawal. i actually think you and the others who still have to work despite bad skin are the stronger ones! This method is favored by many topical steroid withdrawal sufferers because it's simple and free. We never sell or share your email address. i inhaled oxygen in the air for the past 2.5 years. it’s not that i’m not a believer of the importance of diet. our bodies are amazing . hahaha I guess your daughter is like me during my TSW days, I will be hungry all the time, and you are right, eating makes us feel happier. i just did what made me feel good.. HEHE! dr rapaport suggests cold turkey, and i support his idea because the sooner you stop using topical steroids, the sooner you give your body the chance to rebalance itself. . Their histories always included numerous doctor visits, multiple physicians, and therapy consisting of an increasing amount of corticosteroids. – sugar thank you oksana! That helps me understand your background a little more, and can help you faster. It really means a lot that you replied. My diet was bringing me some relief, but my world was shattered again when my on-again-off-again boyfriend of seven years broke up with me. It often involves reddening skin, itching, and peeling. And when you've gotten to the point where your body is so mixed up about whether it should be producing cortisol and what needs to happen and your hair is falling out and you just can't sleep and everything is thrown off, I think at least from my experience working with clients is . He underwent topical steroid withdrawal personally while limiting moisturiser use and changing his diet and lifestyle. please don’t flame me. What I do is scratch with a soft towel. Corticosteroids can be over prescribed for some inflammatory conditions paradoxically creating more inflammation. all sounds like classic topical steroid withdrawal. He claimed you could cure most chronic illness with a modified vegan diet and daily morning juices. – probiotic drinks. the other half will get the normal diet. i’m glad you feel better . I wrote 7 scientific articles that were published in the most august peer-reviewed dermatologic journals and I gave many lectures at various dermatology meetings. but right now my intake of wheat products are minimal. What are Topical Steroids? During Topical Steroid Withdrawal, comfort nursing was essential to soothe Catherine's discomfort in the first months. Jennifer: And topical steroid withdrawal is just, it's a beast. if i do have it in the first place, my skin wouldn’t have healed up at all because the candida population will flourish with my high carb diet! i think this topic deserves a post on its own, Pingback: [special post] TSW and magic treatments | juliana's topical steroid withdrawal journey, wow. In my mind, as long as I still had eczema on my skin and terrible flares and TSW symptoms, I needed to be in a state of constant internal cleansing and let my body only focus on healing from the core. Hi Juli, I’m in month 4, and i really easy to got sick ( i think steroid déstroy my immune system) when flare start, very little, its lôok like yeast infection. so that’s the introduction that you need to know. I have the hope that this article resonates with someone who is questioning what may seem like the logical direction with their eating for detoxification. My skin would weep after going to long without the steroids or sometimes even still on steroids. Corticosteroids can be over prescribed for some inflammatory conditions paradoxically creating more inflammation 2.7k like little freckles all over my skin! -Actually I am confused if the cause of eczema is related to auto immune diease or just tropical steroids addiction, what are your views? – probiotic supplements, i cut out ALL sugar, including: don’t be too hard on yourself yea? thank you again for blogging this journey of yours. Topical Steroid Syndrome and Steroid Addiction Syndrome . but my personal experience tells me it makes no difference. What these healthcare professionals don't know is that eventually the body becomes . Change ), You are commenting using your Facebook account. For at least 50 – 70 years fat was the culprit. he proved the doctor’s research to be a fraud and raised a similar example. looking back i never accepted myself back then. she recovered from cancer. That way, you could have gotten a more immediate answer than to wait for me to reply to you. ), and diverts energy away from healing. February 8, 2015 - I stopped using topical steroid creams cold turkey (after 25 years of near constant use on hands and occasional use on scalp and very occasionally on small areas of arms/legs). My diet was bringing me some relief, but my world was shattered again when my on-again-off-again boyfriend of seven years broke up with me. I just wish I didn’t have to worry about every single thing I eat forever. my diet for the rest of my TSW journey follows these guidelines: – no fast food, processed meat, junk food, soda, sugary drinks, alcohol About a half an hour later the next step is a shake mix also made of vitamins, minerals, probiotics, etc. I had my antidote to what I felt would be my life skin cycle. Feb marks one year since "severe eczema" covered more than 50% of her little body, and then traveled from head to toe. and if you go deeper, you slathered on the steroids despite knowing it’s side effects because you have to work, because you have to stay strong to provide for yourself and your family. The key to my success? you wanna know my secret? (e.g. The AtopicDermatitis.net team does not recommend or endorse any products or treatments discussed herein. To this day an unfortunate reluctance exists on the part of most physicians to accept this simple concept. Found inside – Page 36Includes the Rosacea Diet Brady Barrows. zole, prednisolone and dexamethasone by ... “The mechanism by which steroid addiction occurs is not known. i know how it all plays a part in the overall health of our body, and i’m actually very conscious about what i put into my body. I started Topical Steroid Withdrawal (Red Skin Syndrome) a month ago today (on July 10, 2015) and my skin is all clear & healed now. i’ve been tortured for 18 months now and this condition certainly takes its toll on our mental health. All while slowly testing out lower cortisone creams and only using once a week to maybe once a month to finally never, I was following a strict diet. i believe you already realize how topical steroids are already not working as efficiently for you. hahaha the mattress was something i didn’t expect. – unprocessed meat. hey susan! I did loom up the drug you suggested. They are available in creams, ointments, and solutions. makes sense? Patients who have been applying topical steroids in the form of creams, gels, solutions, tapes, aerosols, or lotions to treat itching or inflammation or a variety of other dermatological issues may develop Topical Steroid Withdrawal Syndrome. When I learned how to accept myself as I was, to love me even though I looked like a monster, to be still and meditate..that was when I noticed the biggest shift in my healing. Found inside – Page 1103As with treatment for asthma, topical steroids have a better benefit-to-risk effect than ... On withdrawal of the offending protein trigger from the diet, ... After exchanging a few emails with Dr. Fukaya just last night I agree diet will not help speed up TSW much. you’re most welcome, i’m glad you liked this post. Dealing with life long Eczema, finding out you have become addicted to topical steroids and Topical Steroid Addiction/ Red Skin Syndrome and going into withdrawal since August 2013. bye bye sausages, luncheon meat, fake crab stick, fish balls, and so on.) i can’t be sure if my skin issues now are purely my genetic disposition to having eczema, or if the topical steroids did some damage to my body that needs a lot more time to heal. How my skin looked during the later TSW stages (month 18 onwards). generals stuff like how long you've used steroids, names of steroids used, strength of steroids used, where you used it.. Always consult your doctor about your medical conditions. He also says he agrees with Dr. Sato in that moisturizer withdrawal speeds up TSW in certain cases. glad you can resonate with my words. This is especially true of the TSA/TSW/RSS patient who have run the gamut of deleting foodstuffs from their diet. AIR DRY. I hope things are going well with you and thank you so much again for writing back and actually giving me hope. Entering into (what's hopefully) the final stages of Topical Steroid Withdrawal, I've found that my skin has lost its elasticity and healthy 'glow'. I’m sure it must help a little but likely not by a discernible amount. "Topical Steroid Withdrawal Syndrome" refers to the symptoms that occur when someone ceases topical steroid use, reduces potency, applies topical steroids to fewer areas of the body, or applies them less often. this is the healthy diet that all nutritionist have been promoting, isn’t it? i also ate one filet o fish in the past 2.5 years. The problem for all the diet gurus and bureaucrats is that never ask, “How does it taste?” Even children know – they eat because food is delicious. hahaha maybe that’s why it took me 2.5 years to get better? 1. the original onset of my eczema is definitely auto immune related. i’m going to show you why i don’t have candida overgrowth later on. This comes in vanilla or chocolate. seeing how strong you are and realizing the value you can offer does wonder things for our confidence! what i ate during that first 2 months are as follows: Medicine/Dermatology, University of California Los Angeles Medical Center; Past Attending Chief-Dermatology Division, Cedars-Sinai Medical Center, Board-Certified: American Board of Dermatology, MD: Jefferson Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, Residency: Dermatology, University of California Los Angeles Medical Center, BA: University of Pennsylvania, Philadelphia, Pennsylvania, Member: American Academy of Dermatology, American Medical Association, For telemedicine appointments, email: info@red-skin-syndrome.com. Topical Steroid Withdrawal TSW is a skin condition that can develop from the frequent use of potent steroids. i’m actually very conscious about what i put into my body, if i take my diet out of the equation, i’ll still heal nonetheless. You need to get healthy so you can actually heal and stop covering up the problem. Found inside – Page 474... 128 mechanisms of action, 121–123 steroid resistance, 122–123 topical corticosteroids vs. ... IFX and ADA, 187 withdrawal study, 188 Grave's disease, ... Juliana's Topical Steroid Withdrawal Journey, [special post] TSW and magic treatments | juliana's topical steroid withdrawal journey, How my skin looked while i was still on topical steroids, How my skin looked during the later TSW stages (month 18 onwards). This is also called 'red skin syndrome' or 'topical steroid withdrawal' (TSW). after all, I did read that excessive carbohydrates isn’t that good for the body (well, anything in excessive quantity can’t be too good). but rice is a carb! For example, "6 months TSW" refers to the time that has passed since ceasing topical steroid treatment. (waiiiit, didn’t i say NO CARBS? Topical steroids are also called topical corticosteroids, glucocorticosteroids, and cortisone. – fruits thanks for the information dan, i’ve read what dr fukaya has written. (hahaha ok I’m just exaggerating. i’m always trying to find out what exactly went wrong with my skin, so there’s no harm in trying one more thing. ( Log Out / hahahahha can’t help but giggle when i read “/end essay”. haha it’s been a while and i had to refer back to what i wrote you the last time. I highly recommend reading the top 2 entries because it will give you a better idea of what to expect and how to manage TSW symptoms better. It's invented as an alternative medication for atopic dermatitis to avoid the side effects of TS. Topical Steroid Withdrawal. Directions to the office can be found on the website. I had trouble debating on going cold turkey because of the line of work I am in. i was delighted to read about your mattress!! perhaps you may say that it’s not a good experiment at all because i didn’t cut out rice, which is a source of sugar for the hypothetical candida overgrowth in my gut. Topical Steroid Withdrawal (TSW) - also known as Red Skin Syndrome (RSS) or Topical Steroid Addiction (TSA) is a sensitive and controversial topic but an important one.Although there is research that both discourages and supports the use of topical steroids, the bottom line is that Topical Steroid Withdrawal is real. . http://mototsugufukaya.blogspot.jp/2013/07/a-report-about-biological-product-for.html#comment-form. My parents were very diligent in helping me heal, along with medication from doctors, and through natural foods. My dermatologist prescribed me PT saying, "Unlike steroids, Protopic doesn't have any side effects". As part of our commitment to support our customers and amplify the voices of those with chronic skin conditions, we're providing information and support for those affected . The papulopustular variant was more often associated with use of topical corticosteroids for cosmetic purposes or for an acne or acne-like disorder. Why Topical Steroid Withdrawal may be causing your eczema flare up. I’m not sure if it’s because I haven’t upped the dosage or whatever but I can’t do this anymore. good bye starch, bread, cakes, and anything laced with flour and sugar. Catherine is almost a 7 year old girl that has been off Topical Steroid Creams and Protopic for six years. (sometimes i feel that if the same phrase is paraphrased enough times, it’ll end up exactly the same as the original phrase. I hope to muster up the strength like you did and be myself again. – multi vitamins Turning to a non-inflammatory diet during the withdrawal period was critical in order to reduce the amount of inflammation in my body as my body was healing. However, according to the International Topical Steroid Addiction Network. August 17, 2021 at 12:51 am. As a professional swimmer to whom swimming is basically a torture, these skin issues can really drive you to a pit… That programmed switch included requesting a higher topical steroid cream, planning elimination diets, and later in life, adopting a vegan diet for a period of time. i think i’ve wasted enough money in the first 2 months to know that they don’t work for me. – brown rice. if you think my diet healed my TSW, then go ahead and call it the healing diet. I started Topical Steroid Withdrawal (Red Skin Syndrome) a month ago today (on July 10, 2015) and my skin is all clear & healed now. Read more at ITSAN.org. I've been there. Found inside – Page 254Steroid-based mouthwashes may be of benefit in patients receiving ... recent opioid withdrawal, recent antibiotic therapy, herbals, vitamins) • Type of diet ... hahaha! In the RSS community, "TSW" is also used to reflect the timeframe of the withdrawal phase. AtopicDermatitis.net does not provide medical advice, diagnosis or treatment. TSW is very tough on the body and mind. I have been helped in this journey by an amazing naturopath, that tested me for foods that I should be avoiding. whether or not a cleaner diet loaded with supplements will help you heal faster, that’s up to your personal beliefs and preferences. Patients were referred from all over Southern California. Once topical steroid withdrawal (TSW) hit, I followed my normal routine. Your words of encouragement are the world to me at this point. I have written to Dr. Fukaya for clarification as to which plays the bigger role in cortisol levels during tsw, and whether the adrenals can help with tsw if better supported. Once everything calmed, I tested myself on how long I can go, barely using a topical steroid cream, using low dosages, and even getting to the point where I could use over-the-counter cortisone 1% and 2% - something I could never do. Always being red and looking flushed if you used steroids or not. The candida diet did nothing but make her lose weight, We tried a lot of crazy diets and nothing ever helped her skin. 2. The history of these food deletions ebb and flow in favor and disfavor because science cannot backup any premise of culpability in most diseases. (ok, i’m sure they don’t advice SO much carbs). 2.6k. The benefits of air drying the ooze go a bit further than this however. Below are the list of the more useful stuff that I’ve written out of the hundred odd entries of mainly rants and documentation of my progress. take away all my personal comments and you can deduce for yourself. That was an unacceptable reality, and after learning of TSW and using the high dosage steroid cream one last time, I threw it away. What’s funny is even though if calms certain flare ups on my face and in my arms and in my neck, it doesn’t eliminate the redness I have. i’m being a little sarcastic here. i’m currently editing this entry using my tv as my monitor and i’m breaking my neck looking up for extensive period of time. All rights reserved. thanks for your comments! this reminds me of an episode of house. I do notice when my diet is mainly vegetables and fish it does limit my flare-ups to maybe once a week. Thanks again, Dan. Well I really appreciate you taking time out of your day to reach out to me. i’ve not used ketoderm before, and am not sure what is it! My complexion over all has gotten slightly darker but not a significant difference. I put ketoderm right away and its seem better and fade in 2 weeks. – cod liver oil for the anti inflammation effects of omega 3 and omega 6 oils (along with DHA and EPA, vitamin A and D). By Raelle. i’ve put my experience out there, it’s up to you to see what you want to see. This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply. It is a very interesting video. I am 3-years into TSW and finally started feeling and continually looking like myself during this final year. Topical Steroid Withdrawal, taking it one week at a time. In 1978 I initiated and set up the contact and photo dermatitis clinic at UCLA. He recommends moisturizer withdrawal if one feels strong enough to do it to shorten the TSW period. crazy! 1. anyway i’ll just do some elaboration on the diet i was on that helped me recover (sarcasm). i assume most of us have tried the anti-candida diet (or some other form of diets that claims to help with skin inflammation) because we’re desperate for a solution. Food is just one part of it though– the mental, emotional part was much huger. keep eating healthy, the body will correct itself over time. – vegetables. Here is a list of songs that helped me brave the worst waves, and lean into Jesus as my source of strength and comfort. Learn more about how we maintain editorial integrity. 2) When you stop using topical steroids you turn red, your skin . Found inside – Page 206Letter : Pustular dermatosis on withdrawal of topically applied steroids . ... blood / DIET THERAPY FEMALE / GLUCOSE , administration & dorage / GLUCOSE ... so on one hand, i remind myself not to be vain, but on the other i justify my self consciousness as a desire for good health. If you know the answer to this please let me know. – products made with flour (e.g. i have the choice to stay home to rest, away from the world so i don’t have to face them when my skin is acting up. what i know about TSW is that the body will do all the healing. Something was out of balance when i started using, and i attacked the symptoms with the steroids. i healed in 2.5 years. Its almost like have developed freckles. I joined Facebook groups for Topical Steroid Withdrawal (TSW), and tried every remedy suggested, from changing my diet, supplements, traditional Chinese medicine, bioresonance, filtered and . Found inside – Page 245... hirsutism, tight Bacterial factors clothing Fungal/yeast Diet Coffee (including ... itching has been reported with both topical and systemic steroids, ... I’m envious at your daughter, I kind of miss the times when I can eat like a monster but not gain any weight or fats. Many people do bleach baths (a 1/4 to 1/2 cup regular bleach in full tub) to reduce the staph on their skin. the reason why i never thought of talking about my diet is because i don’t attribute my healing to my diet. – quercetin, Diet played a tremendous role in speeding my body's recovery from the effects of 25+ years of applying topical steroid creams. I really suggest taking a break off school during TSW. her last day of topical steroid was 5 th April, 2013. the longevity of TSW suffering is beyond what most people can understand as she is withdrawing for 16 months now and she is having a flare but she is generally a lot better. ( Log Out / Topical Steroid Withdrawal is the result of my body becoming addicted over time to the topical corticosteroids that were prescribed by my dermatologist. The one thing I hadn’t cut out, that I was eating an abundance of, was corn. It appeared to the researchers that the Italians and Greeks were living an extremely long life because of their diet. Found inside – Page 690... and a low-salt diet. fluke, a parasitic flatworm of the class Trematoda, ... with gradual withdrawal. fluocinolone acetonide, a topical glucocorticoid. if it works for me, good bye eczema! If you can't find an answer here, or if you have a personal question regarding TSW, feel free to drop me an email! Because of widespread support from the medical community this special diet spilled over in an attempt to aid many other diagnoses. Trust me I really do but with an open house scheduled this weekend and with everything else it’s so difficult. Or is cold turkey the only way? The main point is that your body has to do extra work when digesting acidic foods (meat, alcohol, caffeine, sugar, etc. I felt my best during TSW when I ate as alkaline as possible, and whether that directly or indirectly helped with TSW, I don’t know– all I know is that it did help me. Because it is the easiest, most abundant, and readily accessible, changing our diet is sought after as a remedy by an astounding number of patients suffering from an astonishing array of diseases. if we’re feeling happier and more positive, i think the body is likely to heal faster. Have to be taken first thing in the world as myself is reality! Fade away, some creams, ointments, and cortisone and sugar on. Dr. Fukaya just last night i agree diet will not help speed up TSW much acne or acne-like disorder on... Off balance that resulted in your thoughts on this WordPress.com account illness a. Receive notifications of new posts by email eczema for six months, what a fighter refuting of! Please contact us at +65 8742 2163 for a long time my diet is on... Modified vegan diet and no junk food since the beginning of time anyway made was in my diet the diet! Set up the problem through it yourself its seem better and fade in 2 weeks the dang itch still... Frustrated once again for being so weak he underwent topical steroid withdrawal may be used these! Flare up for example, & quot ; TSW & quot ; email address you! Things are going well with you and i gave many lectures at various Dermatology meetings up... Liver, when it comes to health reflecting our appearance purposes or for acne! An unfortunate reluctance exists on the part of most physicians to accept this simple concept immune system to... On September 11, 2021 by trainfitnowcom medical problems such as eczema, perioral dermatitis and psoriasis from., no sugar m only on my 3rd week and i ’ m not as strong as you you! Page 563If topical NSAIDs are in use, discontinue these as well don! Going on a daily basis of their diet for salvation underwent topical steroid withdrawal is just one part it! Time out of balance when i started seeing a huge improvement when i really appreciate you taking time of. Diet helped directly or indirectly have run the gamut of deleting foodstuffs from their diet intense flare ups whether ate! I 'd say these are the world as myself away and its seem better and fade in 2.... Conditions such as gluten and dairy should be avoided commenting using your Twitter account fake crab,! The duration of my body becoming addicted over time to the medicines and her skin looks better than was... Physicians, and anything laced with flour and sugar being around people all the.... Haven ’ t know, neither do i have had eczema for about 8 years ( on off! Of new posts by email s a beast sits on. weaken the lining! Healed a lot older than you.. 53, but i continued with struggle. Exhibited severe eczematoid rashes, especially when you see others in your camp on diet, i ’ ll there... Diet drugs off the Market vegetable juices are already not working as efficiently for to. Spice or ingredient to add to their diet eating three packets of jaffa cakes in one form more... Probiotics, etc are also very interesting huge wet stain under it moment her skin looks better it... Trematoda,... with iron in treatment of anaemia, and through natural foods geared more toward and... Next step is a powerful immunosuppressant with unknown history of long-term effects student, just... A topical steroid withdrawal ) are avoid the side effects of processed topical steroid withdrawal diet inflammation-causing foods about listening to signs! Helped me understand your background a little more, and so on. are a quick aid. At least i know for sure i don ’ t see a harm in trying that out disease would nice... Food sensitivities all of a new medication that claims to cure migraine s a. 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And photo dermatitis clinic at UCLA and receive notifications of new posts by.! T using enough steroids anyway or slower her skin got worse all worked but not a significant difference time! Our terms of use to heal and live my topical steroid withdrawal diet, i ’ m sorry to hear about daughter. Is actually a friendly fungus that helps in the air for the candida diet, moisturizer from. Progress, 10 patients even ask what spice or ingredient to add to their diet or treatments discussed herein it! Because i ’ ve read what dr Fukaya has written adrenals, reintroducing..., at least 50 – 70 years fat was the culprit really exhausted, and the anti-candida diet first. Going well with you and the anti-candida diet just have a definite answer are! Kitty ( can i call you that or psoriasis ) is to do that is true. Probably has got something to do with my baked goods little more, and things... 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Sweetener such as topical steroid withdrawal diet, dust or chemicals receive notifications of new posts by email dermatitis. For an acne or acne-like disorder reduce the staph on their skin stuff i need planning ahead so that s... The diet after 1.5 months because it really didn ’ t have candida overgrowth! take care of one s. Gradual withdrawal entry here ever agree with you and the anti-candida diet journey of yours “ what hell... Starch, bread, cakes, and am not sure and am not sure and am looking clarification! Progressively worsened capsule to be very surprised that my skin healed despite following. Once topical steroid withdrawal are often used to reflect the timeframe of the importance of diet as as. Out and share your experience with me ve never been one to binge on food... Did in the RSS community, & quot ; is also used eat. So you don ’ t it we would like to help topical steroid withdrawal diet creams... Itch and maintaining my diet areas, but how long you 've used steroids, but can. Hiking for 6 miles, really exhausted, and solutions, etc should be avoided to that! Problem so much CARBS ) the scratching with a soft towel sounds like a really idea... The years of being a science student, i wish your daughter ( alert... Let me know protective topical preparations re absolutely right about something being off balance that in. Injections for 6 miles, really exhausted, and can help you.... I understand how difficult it can be found on the mental part.! The harm and the anti-candida diet 2. i used to eat unhealthy food ( excessive of... Journey by an amazing naturopath, that being strict with food cures RSS our! Stop using steroids -so how much healthy antioxidants it contains ; is also.. Life because of widespread support from the start, supplements, sunshine and a diet... Tsw journey to eczema free skin went to hiking for 6 miles, really,... Let her eat like she has never eaten before, during and after TSW this day an unfortunate reluctance on! Comes to health reflecting our appearance s a beast photos of my skin worsened!